Resources

Newly Diagnosed:

1. Prostate Cancer: Understand the Disease and Its Treatment by Fred Saad (ebook)

__________________________________________________________________________________________________

 
Pelvic Floor:

1. Male Pelvic Floor Instructions
2. Understand and Manage the urinary and bowel side effects with local treatments – youtube video series
3. CUA leaflet: Voiding Diary
4. Climacturia Management Strategies

__________________________________________________________________________________________________

ADT related side effects:

1. Androgen Deprivation Therapy: An essential guide for prostate cancer patients and their loved ones
   • Link to purchase the book: https://www.amazon.ca/Androgen-Deprivation-Therapy-Second-Essential/dp/0826183913/ref=dp_ob_title_bk
2. If I Were Tom – ADT Treatment and Side Effects
3. TrueNTH – The Androgen Deprivation Therapy Educational Program
4. BC Cancer – Guidelines for the Prevention of Osteoporosis for Men with Prostate Cancer on Hormone Therapy
5. Canadian Cancer Society – What is ADT?
6. Prostate Cancer UK – ADT
7. Prostate Cancer Foundation (US) – Maintaining Health During Androgen Deprivation Therapy
8. Prostate Cancer and Your Heart Health 

__________________________________________________________________________________________________

General Symptom Management:

1. Fatigue/Tiredness
   • http://www.bccancer.bc.ca/health-info/coping-with-cancer/managing-symptoms-side-effects/fatigue-(tiredness)
2. Pain Management
   • http://www.bccancer.bc.ca/health-info/coping-with-cancer/managing-symptoms-side-effects/constipation-caused-by-your-medications
   • https://www.healthlinkbc.ca/health-topics/tv3824#tv3824-sec
3. Diarrhea
   • http://www.bccancer.bc.ca/health-info/coping-with-cancer/managing-symptoms-side-effects/diarrhea-caused-by-medications
   • http://www.healthlinkbc.ca/healthtopics/content.asp?hwid=tv3875spec#tv3876
4. Constipation
   • http://www.bccancer.bc.ca/health-info/coping-with-cancer/managing-symptoms-side-effects/constipation-(caused-by-opioid-pain-medications)
   • https://www.healthlinkbc.ca/health-topics/tv3916spec
5. Breathlessness/Shortness of breath
   • http://www.bccancer.bc.ca/health-info/coping-with-cancer/managing-symptoms-side-effects/breathlessness

Exercise Related resources:

1. HealthLinkBC – Physical Activity Services for Cancer. Telephone, email & web-based information, advice and exercise physiology services
2. BC Cancer Exercise Support
3. Canadian 24-Hour Movement Guidelines: An Integration of Physical Activity, Sedentary Behaviour, and Sleep
4. TrueNTH Lifestyle Management – Physical Activity, Stress-Reduction, and Nutrition Programs and Resources for Men Living with Prostate Cancer
5. Sirvivor BC: Prostate Cancer Exercise Program – a community exercise program launching in 5 locations across the province

_____________________________________________________________________________________________________________

Nutrition related resources:

PCSC Patient Information Sheets and Media

1. Nutrition and Prostate Cancer Overview
2. Prostate Cancer & Nutrition FAQs
3. Dietary Fats
4. Healthy Eating
5. Prevention of  Osteoporosis
6. Supplements and Specific Nutrients
7. Nutrition for Prostate Cancer Patients video

Other Prostate Resources

1. Nourish – Eat Well Tips for Men with Prostate Cancer
2. Prostate Cancer Foundation Health & Wellness 
3. Prostate Cancer Foundation Diet Guide 

Additional Resources

1. HealthLinkBC Dietician Services (telephone, e-mail and web-based information, advice and oncology nutrition service)
2. Canadian Cancer Society – Supportive Care
3. Canada’s Food Guide

Specific topics: 

1. Protein
   • Quick Nutrition Check for Protein
   • Importance of Protein
2. Bowel Movement Issues
   • Food Choices to Lessen Gas
   • Food Choices to Help Manage Diarrhea
3. Calcium Calculator
   • Osteoporosis Canada calcium calculator
4. Heart Health
   • Heart Healthy Eating (HealthLinkBC)
5. Vegan Diets
   • Vegan Diet 
6. Recipes
   • Urology Care Foundation – Living Healthy Cookbook with Information about Urologic Cancers
   • Cooking With Lentils 
   • Ellicsr Kitchen
   • American Institute for Cancer Research (AICR)

_____________________________________________________________________________________________________________

Other Lifestyle Management related resources:

1. CAMEO – Complementary Medicine Education Resources
   • http://cameoprogram.org/patient-health-care-provider-resources/sign-documents/
2. Canadian Cancer Society: One Step at a Time: You can Quit
   • One Step at a Time: You Can Quit | Canadian Cancer Society
3. Canadian Cancer Society: Help Someone Quit – one step at a time
   • One Step at a Time: Help Someone Quit | Canadian Cancer Society
4. CAMH Cannabis Use Guidelines
   • https://www.camh.ca/-/media/files/guides-and-publications/dyk-cannabis.pdf
   • https://www.camh.ca/-/media/files/pdfs—reports-and-books—research/canadas-lower-risk-guidelines-cannabis-poster.pdf
   • https://www.camh.ca/-/media/files/pdfs—reports-and-books—research/canadas-lower-risk-guidelines-cannabis-pdf.pdf
5. UHN – Know about alcohol and cancer risk (pamphlet)
   • http://www.uhn.ca/PatientsFamilies/Health_Information/Health_Topics/Documents/Know_about_Alcohol_and_Cancer_Risk.pdf
6. CAMH – Dealing with Drinking: How to quit or cut down
   • Link to purchase the book: https://store-camh.myshopify.com/products/pg081-pg070

If you are looking for a counsellor to talk to:

1. BC Cancer Patient and Family Counselling Services
2. Counselling BC
3. VGH Access and Assessment Centre – The Access and Assessment Centre (AAC) is here to help you, your family member or your friend during a non-life threatening mental health and/or substance use issue.

_____________________________________________________________________________________________________________

If you are looking for aids to help plan the journey ahead/decision making:

1. Canadian Cancer Society – the ABCs of Prostate Cancer
2. TrueNTH – Treatment Decision Support
3. If I were Tom – an interactive website from the patient’s perspective to help patients plan for the journey ahead
4. Prostate Cancer 5th Edition (2019) – written by Dr. Fred Saad, published by the Canadian Urological Association. 
5. Prostate Cancer Foundation (US) – Prostate Cancer Patient Guide 2021
6. BC Cancer – Steps to Problem Solving
7. Canadian Cancer Society – Life after Cancer Treatment Information Booklet
8. Canadian Cancer Society – Cancer Information Services
9. NCCN Guidelines for Patients – Prostate Cancer: Early Stage (multiple languages available) 
10. NCCN Guidelines for Patients – Prostate Cancer: Advanced Stage (multiple languages available)
11. Prostate Cancer Foundation of Australia –Understanding Prostate Cancer for the LGBTIQA+ People 

_____________________________________________________________________________________________________________

If you are looking to talk to someone who’s been there:

1. TrueNTH – Peer Support
2. Canadian Cancer Society – Online Community
3. Prostate Cancer Foundation of BC – support groups in your area. Support groups can also be very therapeutic and can assist men in building strengths and competencies to manage the unique challenges experienced
4. Prostate Cancer Canada – support groups in BC
5. BC Cancer – Support programs in Vancouver
6. BC Cancer – Support programs in Kelowna
7. BC Cancer – Support programs in Prince George
8. BC Cancer – Support programs in Victoria
9. BC Cancer – Support programs in Surrey

_____________________________________________________________________________________________________________

If you are looking for resources to help cope with stress:

1. Mindfulness and Cognitive Behavioural Therapy Improves Sexual Health and Intimacy in Couples After Prostate Cancer
2. Heart and Stroke Foundation – Coping with stress
   • https://www.heartandstroke.ca/get-healthy/reduce-stress/manage-your-stress
3. Canadian Cancer Society – Cancer Information Services
   • http://www.cancer.ca/en/support-and-services/support-services/talk-to-an-information-specialist/?region=bc

_____________________________________________________________________________________________________________

If you are looking for social support/engagement in the community, non-prostate specific:

1. City of Vancouver Recreational Programs – Offers a wide variety of accessible recreational programs and activities to help seniors get involved and stay active
   • vancouver.ca/people-programs/recreation-programs-and-centres-for-seniors.aspx
2. HIM Health Initiative for Men: HIM is an initiative set out to strengthen and support gay men’s health and well-being including clinics, counselling services and social events.
   • checkhimout.ca/events/category/social-health/
3. Qmunity program offers opportunities for LGBTQ community connection, social support, and personal development for folks 55 years and older.
   • qmunity.ca/get-support/olderadults

PCSC Patient Information Sheets:

1. Sexual Adaptation after Prostate Cancer
2. Masculinity and Prostate Cancer
3. Sexual Desire and Arousal
4. Talking about Sex (Tips for Being Sexual)
5. Mindfulness and CBT Improves Sexual Health and Intimacy in Couples After Prostate Cancer
6. Mindfulness and CBT Study (INTROSPPECT) Feedback
7. Intimate Play with a Soft Penis
8. Optimizing Orgasm and Managing Painful Orgasm
9. Rapid Ejaculation (Orgasm)
10. Penile Rehabilitation Following Surgery
11. Penile Injection Therapy 
12. Vacuum Pump Erection Device (VED)
13. Tension Band and Tips for Comfort
14. MUSE: Medicated Urethral System for Erection
15. Pills to Help Create Erections (PDE5i)

_____________________________________________________________________________________________________________

Prostate Cancer Specific Resources:

1. Prostate Cancer UK: Prostate Cancer UK’s “Living with Cancer” under “Sex and Relationships” highlights the various sexual side effects of treatment and how these may affect your sexual function and relationship. You can watch videos of personal accounts highlighting real patient experiences and how they are managing and adapting to these changes.
   • prostatecanceruk.org/prostate-information/living-with-prostate-cancer/sex-and-relationships
2. Prostate Cancer Foundation of Australia: Understanding sexual issues following prostate cancer treatment
   • prostate.org.au/media/468674/understanding-sexual-issues.pdf
3. SHAReClinic – online Sexual Health and Rehabilitation Clinic
   • https://sharec.truenth.ca/

_____________________________________________________________________________________________________________

Prostate Cancer and Sexuality:

1. Welcome to the PCSC Sexual Rehabilitation Clinic
2. Mindfulness and Cognitive Behavioural Therapy Improves Sexual Health and Intimacy in Couples After Prostate Cancer
3. Optimizing Your Sexual Adaptation After Prostate Cancer Treatment
4. Intimacy Tips for Prostate Cancer Survivors
5. Orgasm After Prostate Cancer Treatment
6. Using PDE5 Inhibitor Pills for Erectile Dysfunction
7. Vacuum Erection Devices: How Can they be Used to Assist in Erectile Dysfunction?
8. Treating Urinary Leakage with Sexual Activity
9. Penile Implant Surgery for Erectile Dysfunction
10. Penile Rehabilitation Following Treatment for Prostate Cancer
11. Setting Expectations: Sexual Function Changes Following Prostate Cancer Treatment
12. Managing Sexual Dysfunction Following Prostate Cancer Treatment: Overview
13. Penile Injection Therapy for Erectile Dysfunction

_____________________________________________________________________________________________________________

Sexual Health and Relationship Issues:

1. Mindfulness and Cognitive Behavioural Therapy Improves Sexual Health and Intimacy in Couples After Prostate Cancer
2. Talking About Sex with your Partner
3. Senior Planet: “We don’t lose interest in sex and connection as we age, and there are health reasons to keep seeking both. But we do have to adapt”. Award-winning author and advocate for ageless sexuality Joan Price gives sex and dating advice including articles, videos and Q&A’s.
   • seniorplanet.org
4. LiveAbout: Canadian sex educator and author Cory Silverberg provides straightforward answers to questions about sexual health sex tips and techniques and includes articles on sex research, science and culture.
   • https://www.liveabout.com/sexuality-4145431

_____________________________________________________________________________________________________________

Counselling Services:

1. Counselling BC: This is helpful website to find a counsellor and/or sex therapist in your area. After choosing your city, you go to “Area of Practice” and click on a specialty such as “sexuality” and/or “marriage and relationship issues”
   • counsellingbc.com/counsellors
2. Psychology Today: Here is another website to find a counsellor and/or sex therapist in your area. Choose your area and then under “Issues” you can click a specialty such as “sex therapy” or “relationship issues”
   • psychologytoday.com/ca/therapists

_____________________________________________________________________________________________________________

Mindfulness:

Studies have shown that regular meditation or mindfulness practice can increase your attention or presence when being sexual, enhancing intimacy and pleasure. Mindfulness may also assist with managing anxiety, stress and depression. Here are some free guided mindfulness exercises:

• Mindfulness and Cognitive Behavioural Therapy Improves Sexual Health and Intimacy in Couples After Prostate Cancer
• marc.ucla.edu/mindful-meditations
• https://www.mindful.org/category/meditation/
• freemindfulness.org/download
• pocketmindfulness.com
• archive.org/details/MCullenBodyScanMeditation
• buddhanet.net/audio-meditation.htm

_____________________________________________________________________________________________________________

Book Recommendations:

1. Prostate Cancer Specific
   • Saving Your Sex Life: A Guide for Men with Prostate Cancer by John P. Mulhall
   • A Gay Man’s Guide to Prostate Cancer by Gerald Perlman and Jack Drescher
   • Prostate Cancer and the Man You Love: Supporting and Caring for Your Partner by Anne Katz
   • What Every Gay Man Needs to Know About Prostate Cancer: The Essential Guide to Diagnosis, Treatment and Recovery by Michael A. Hoyt
   • What Men Won’t Talk About and What Women Need to Know: A Woman’s Perspective on Prostate Cancer by Glenda Standeven
2. Sex & Intimacy
   • Intimacy & Desire: Awaken the Passion in Your Relationship by David Schnarch
   • Intimacy with Impotence: The Couple’s Guide to Better Sex After Prostate Disease by Ralph Alterowitz and Barbara Alterowitz
   • Naked at Our Age: Talking Out Loud About Senior Sex by Joan Price
   • Partners in Passion: A Guide to Great Sex, Emotional Intimacy and Long-term Love by Mark A. Michaels and Patricia Johnson
   • Passionate Marriage: Keeping Love and Intimacy Alive in Committed Relationships by David Schnarch
   • The Seven Principles for Making Marriage Work by John Gottman
   • The Spirit of Intimacy: Ancient Teachings in The Ways of Relationships by Sobonfu E. Somé
3. Mindfulness
   • Journey of the Heart: The Path of Conscious Love by John Welwood
   • Mindful Relationship Habits: 25 Practices for Couples to Enhance Intimacy, Nurture Closeness, and Grow a Deeper Connection by S.J. Scott and Barrie Davenport
   • Full Catastrophe Living: Using the Wisdom of Your Body and Mind to Face Stress, Pain and Illness by Jon Kabat-Zinn and Thich Nhat Hanh
   • Mindfulness: A Practical Guide to Finding Peace in a Frantic World by Mark Williams and Danny Penman
   • Wherever You Go, There You Are: Mindfulness Meditation in Everyday Life by Jon Kabat-Zinn
   • You Are Not Your Pain: Using Mindfulness to Relieve Pain, Reduce Stress and Restore Well-Being-An Eight-Week Program by Vidyamala Burch and Danny Penman
4. Sexuality & Masculinity
   • The New Male Sexuality by Bernie Zibergeld
   • The Will to Change: Men, Masculinity, and Love by Bell Hook
5. Sex Advice & Techniques
   • The Joy of Sex: The Timeless Guide to Lovemaking by Alex Comfort and Susan Quilliam
   • Nina Hartley’s Guide to Total Sex by Nina Hartley and I.S. Levine
   • The Multi-Orgasmic Man: Sexual Secrets Every Man Should Know by Mantak Chia and Douglas Abrams (Other books by this author include: The Multi-Orgasmic Couple and The Multi-Orgasmic Woman)
   • The Ins and Outs of Gay Sex by Stephen E. Goldstone
   • She Comes First: The Thinking Man’s Guide to Pleasuring a Woman by Ian Kerner
   • Ageless Erotica by Joan Price and Cheyenne Blue
   • Mating in Captivity: Unlocking Erotic Intelligence by Esther Perel
6. Overcoming Other Sexual Challenges
   • How to Overcome Premature Ejaculation by Helen Singer Kaplan (this book also applies to men who may no longer have ejaculation from their treatment but still face “premature orgasm”)
7. For Women
   • Better Sex Through Mindfulness: How Women Can Cultivate Desire by Lori Brotto and Emily Nagoski
   • When Sex Hurts: A Woman’s Guide to Banishing Sexual Pain by Andrew T. Goldstein, Caroline Pukall and Irwin Goldstein

1. PCSC Program Youtube channel
2. PCSC Program Facebook Page
3. PCSC Program Twitter Feed

1. AboutMen.ca – YouTube library of videos pertaining to men’s health issues
2. Prostate Cancer Canada
3. Prostate Centre Foundation
4. National Cancer Institute
5. Prostate Cancer InfoLink- Blog with updates on the latest news/research on prostate cancer
6. Physiotherapy Association of British Columbia: How to find a physiotherapist in BC 
7. HealthLinkBC – List of common symptoms and side effects and how to manage them
8. BC Cancer – List of common symptoms and side effects and how to manage them
9. Sexual Medicine Society of North America
10. BC Centre for Sexual Medicine
11. BC Cancer – Hereditary Cancer Program
12. TrueNTH – Canada Projects
13. Men’s Health Research – Interview Series with Dr. Larry Goldenberg
14. Men’s Health Research – Interview Series with Dr. Ryan Flannigan